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The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From

NCT06280261 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 156

Last updated 2024-02-28

No results posted yet for this study

Summary

Objective: To assess the stress levels and life hardships of phenylketonuria patients and their parents.

Conditions

  • Psychological Well-Being
  • Caregiver Burden
  • Life Stress

Interventions

OTHER

parenting stress index, Zarit burden scale, Rosenberg self esteem scale, stait trait anxiety inventory, struggles and difficulties questionnaire

Scales and questionnaires

Sponsors & Collaborators

  • Hacettepe University

    lead OTHER

Principal Investigators

  • Serap Sivri, Prof · Hacettepe University

Eligibility

Min Age
6 Months
Max Age
35 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-05-27
Primary Completion
2020-09-01
Completion
2020-09-01

Countries

  • Turkey (Türkiye)

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06280261 on ClinicalTrials.gov