MedTrace Logo

Modified Delphi for Genomic Bereavement Care

NCT05655741 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 56

Last updated 2023-04-05

No results posted yet for this study

Summary

It is estimated that 1 in 4 pregnancies end in loss, be these early miscarriages, ectopic pregnancies, or later intrauterine losses for any reason. Genomics is a major part of pregnancy loss, and clinicians want to offer the best and most appropriate test available to women and their families, whilst ensuring that there is equity in the access to this testing, so that no family goes through a loss without the right support and information. Whilst there is limited information to inform professionals as to how to incorporate genomics into bereavement care there is a need to identify current expert consensus as to how this should be performed, in order to make recommendations for best practice.

Conditions

Interventions

OTHER

Questionnaire

Participants will be asked to complete a series of 3 questionnaires that will be used to gain insight into the current expert consensus for Genomic Bereavement care for Pregnancy Loss. The 2nd and 3rd Questionnaire will be modified from the first to try to generate consensus, depending on the answers from the previous round.

Sponsors & Collaborators

  • Genomic Medicine Services Alliance

    collaborator UNKNOWN

  • The Leeds Teaching Hospitals NHS Trust

    lead OTHER

Principal Investigators

  • Abigail Hyland, MBBS · Leeds Teaching Hospitals Trust

Eligibility

Min Age
18 Years
Max Age
70 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2022-10-28
Primary Completion
2023-03-17
Completion
2023-03-31

Countries

  • United Kingdom

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05655741 on ClinicalTrials.gov