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Development and Validation of Pediatric Narcolepsy Patient Reported Outcomes Scale

NCT05373979 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 212

Last updated 2025-02-13

No results posted yet for this study

Summary

The purpose of this study is to test a pediatric narcolepsy patient reported outcomes tool to assess pediatric narcolepsy symptoms and their effect on daily functioning and quality of life. The goal is to develop a clinical survey that can improve the care of pediatric narcolepsy.

Conditions

Sponsors & Collaborators

Principal Investigators

  • Kiran Maski, MD, MPH · Boston Children's Hospital

Eligibility

Min Age
9 Years
Max Age
17 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2019-04-02
Primary Completion
2024-05-30
Completion
2024-05-30

Countries

  • United States

Study Locations

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Entities

Diseases
Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05373979 on ClinicalTrials.gov