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A Web-based Observational Study of Patient-reported Outcomes in Adults With Narcolepsy

NCT02769780 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 1500

Last updated 2022-04-05

No results posted yet for this study

Summary

Nexus is a collaboration between academic institutions, advocacy and industry to answer important questions about narcolepsy. It is a web-based observational study of patient-reported outcomes in adult patients with narcolepsy, with follow-up every six months.

Nexus website: www.narcolepsyregistry.com

Conditions

Sponsors & Collaborators

  • Invitae Corporation

    collaborator INDUSTRY

  • Wake Up Narcolepsy

    collaborator UNKNOWN

  • Narcolepsy Network

    collaborator UNKNOWN

  • ICON plc

    collaborator INDUSTRY

  • Jazz Pharmaceuticals

    lead INDUSTRY

Principal Investigators

  • Danielle Hyman, PhD · Jazz Pharmaceuticals

  • JeanPierre Coaquira, MPH · Jazz Pharmaceuticals

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2015-07-08
Primary Completion
2021-08-09
Completion
2021-08-09

Countries

  • United States

Study Locations

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Entities

Diseases
Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02769780 on ClinicalTrials.gov