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Oral Health Related Quality of Life of Patients With Rare Diseases: a Qualitative Approach

NCT05070988 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 28

Last updated 2025-09-12

No results posted yet for this study

Summary

The main objective of the study is to assess the oral health-related quality of life of patients with rare diseases and followed in the rare disease centers of expertise at Necker Hospital in Paris by semi-structured interviews.

Conditions

Interventions

OTHER

Semi-structured interview

Semi-structured interview with the investigating doctor of the study lasting 30 minutes to an hour

Sponsors & Collaborators

  • URC-CIC Paris Descartes Necker Cochin

    collaborator OTHER

  • Assistance Publique - Hôpitaux de Paris

    lead OTHER

Principal Investigators

  • Lisa Friedlander, DDS, PHD, associate professor · Assistance Publique - Hôpitaux de Paris

Eligibility

Min Age
6 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2021-10-20
Primary Completion
2021-11-29
Completion
2021-11-29

Countries

  • France

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05070988 on ClinicalTrials.gov