Prospective Multisite Study of Quality of Life in Pediatric Intestinal Failure

Summary

This study proposes to quantify and describe the quality of life of children with intestinal failure, and to identify the medical and socio-economic factors that impact this quality of life, using data from multiple multidisciplinary intestinal failure centers across the United States and Canada specializing in the care of these participants.

Conditions

• Pediatric Intestinal Failure

Sponsors & Collaborators

• Seattle Children's Hospital

  collaborator OTHER

• University of Alabama at Birmingham

  collaborator OTHER

• Ann & Robert H Lurie Children's Hospital of Chicago

  collaborator OTHER

• Washington University School of Medicine

  collaborator OTHER

• University of Michigan

  collaborator OTHER

• Duke Health

  collaborator OTHER

• University of Texas Southwestern Medical Center

  collaborator OTHER

• Alberta Children's Hospital

  collaborator OTHER

• British Columbia Children's Hospital

  collaborator OTHER

• The Hospital for Sick Children

  collaborator OTHER

• The University of Texas Health Science Center, Houston

  collaborator OTHER

• Children's Hospital Colorado

  collaborator OTHER

• Connecticut Children's Medical Center

  collaborator OTHER

• Boston Children's Hospital

  lead OTHER

Principal Investigators

• Patrick J Javid, MD · Seattle Children's Hospital

• Biren P Modi, MD MPH · Boston Children's Hospital

Eligibility

Min Age

6 Months

Max Age

25 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2020-02-27

Primary Completion

2029-12-31

Completion

2029-12-31

Countries

• United States
• Canada

Study Locations