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The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)

NCT04611516 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1000

Last updated 2025-12-02

No results posted yet for this study

Summary

The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.

Conditions

  • Primary Ciliary Dyskinesia
  • Kartagener Syndrome

Sponsors & Collaborators

  • Bicetre Hospital

    collaborator OTHER

  • Centre Hospitalier Intercommunal Creteil

    collaborator OTHER

  • University Hospital Southampton NHS Foundation Trust

    collaborator OTHER

  • Universitaire Ziekenhuizen KU Leuven

    collaborator OTHER

  • Amsterdam UMC, location VUmc

    collaborator OTHER

  • University of Cyprus

    collaborator OTHER

  • Hacettepe University

    collaborator OTHER

  • Marmara University

    collaborator OTHER

  • Hospital Universitario La Fe

    collaborator OTHER

  • Insel Gruppe AG, University Hospital Bern

    collaborator OTHER

  • University of Bern

    lead OTHER

Principal Investigators

  • Myrofora Goutaki, MD-PhD · University of Bern

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-03-02
Primary Completion
2030-12-31
Completion
2040-12-31

Countries

  • Switzerland

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04611516 on ClinicalTrials.gov