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Registry for Primary Ciliary Dyskinesia

NCT03271840 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 12

Last updated 2023-06-06

No results posted yet for this study

Summary

Primary Ciliary Dyskinesia (PCD) is a rare disease, which means that any single PCD center has experience with a limited number of patients. PCD Registry is the collection of data about PCD from many centers and countries who treat children with PCD. Collecting data about PCD increase the knowledge on PCD, better describe the course of the disease, and help to better understand the progression of the disease and be used to develop new treatments.

In the PCD registry of Alberta, important information about PCD such as time of diagnosis, symptoms, and tests which led to the diagnosis, state of health at diagnosis, the progression of lung function, the occurrence of severe infections, tests and treatments data will be collected from the patients' medical records.

Conditions

  • Primary Ciliary Dyskinesia

Sponsors & Collaborators

  • University of Alberta

    lead OTHER

Principal Investigators

  • Israel Amirav, MD · University of Alberta

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2017-08-26
Primary Completion
2021-11-25
Completion
2021-11-25

Countries

  • Canada

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03271840 on ClinicalTrials.gov