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ADPKD Patient Registry

NCT04039061 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 3000

Last updated 2023-11-18

No results posted yet for this study

Summary

The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways:

* Connect ADPKD patients with opportunities to join clinical studies.
* Collect data for the research community to better describe the ADPKD disease experience and improve patient care.
* Engage with patients by measuring quality of life outcomes.

Conditions

  • Polycystic Kidney Diseases

Sponsors & Collaborators

  • PKD Foundation

    lead OTHER

Principal Investigators

  • Chris Rusconi, PhD · PKD Foundation

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2019-09-04
Primary Completion
2029-09-04
Completion
2029-09-04

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04039061 on ClinicalTrials.gov