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International Registry for Primary Hyperoxaluria

NCT00875823 · Status: WITHDRAWN · Type: OBSERVATIONAL

Last updated 2015-04-07

No results posted yet for this study

Summary

The purpose of this study is to collect medical information from a large number of patients in many areas of the world with primary hyperoxaluria. This medical information will be entered into a registry to help the investigators compare similarities and differences in patients and their symptoms. The more patients that the investigators are able to enter into the registry, the more the investigators will be able to understand primary hyperoxaluria and learn better ways of treating patients with this disease. It is the investigators hope that by entering as many patients with PH as possible, the information that the investigators collect may help physicians diagnose patients sooner and determine what treatments may work best on patients with similar medical or genetic backgrounds.

Conditions

  • Primary Hyperoxaluria
  • Nephrocalcinosis
  • Kidney Stones

Sponsors & Collaborators

  • National Institutes of Health (NIH)

    collaborator NIH

  • Oxalosis and Hyperoxaluria Foundation (OHF)

    collaborator OTHER

  • Mayo Clinic

    lead OTHER

Principal Investigators

  • John C Lieske, M.D. · Mayo Clinic Department of Nephrology and Hypertension

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2003-09-30
Primary Completion
2009-07-31
Completion
2009-07-31

Countries

  • United States

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00875823 on ClinicalTrials.gov