PRecIsion Medicine in CardiomyopathY

Summary

This is a retrospective cohort study of pediatric hypertrophic cardiomyopathy (HCM) patients using chart and registry review methodology. The studies objective is to develop and validate a sudden cardiac death (SCD) risk calculator that is age-appropriate for children with HCM that includes clinical and genetic factors.

Conditions

• Hypertrophic Cardiomyopathy
• Sudden Cardiac Death

Sponsors & Collaborators

• Stanford University

  collaborator OTHER

• Children's Hospital of Philadelphia

  collaborator OTHER

• New York Presbyterian Hospital

  collaborator OTHER

• University of Texas Southwestern Medical Center

  collaborator OTHER

• University of Michigan

  collaborator OTHER

• Children's Hospital Medical Center, Cincinnati

  collaborator OTHER

• Provincial Health Services Authority

  collaborator OTHER

• Stollery Children's Hospital

  collaborator OTHER

• Children's Hospital of Eastern Ontario

  collaborator OTHER

• Royal Children's Hospital

  collaborator OTHER

• Children's Healthcare of Atlanta

  collaborator OTHER

• Primary Children's Hospital

  collaborator OTHER

• Baylor College of Medicine

  collaborator OTHER

• The Cleveland Clinic

  collaborator OTHER

• Monroe Carell Jr. Children's Hospital at Vanderbilt

  collaborator OTHER

• Children's Hospital Colorado

  collaborator OTHER

• Indiana University Health

  collaborator OTHER

• OHSU Doernbecher Children's Hospital

  collaborator OTHER

• Children's Hospital Los Angeles

  collaborator OTHER

• The Hospital for Sick Children

  lead OTHER

Eligibility

Min Age

0 Years

Max Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2017-01-01

Primary Completion

2020-06-01

Completion

2026-12-31