The National Registry Study For the Real-world Patients With Parkinsonian Disorders in China

Summary

The overall goal of this project is to identify, assess and longitudinally monitor subjects who are interested in participating in this study. Participants will enroll through a platform named PaWei, and provide informed consent prior to any study activities. PaWei will collect a variety of information, including participants' demographic information, overall health, family history of Parkinson's Disease, other clinical information (clinical drug use, drug efficacy, and comorbid disorders), mood status, sleep, diet, exercise, memory complaints, online cognitive tests, the Short-Form 8-Item Parkinson's Disease Questionnaire (PDQ-8), Movement Disorder Society-Unified Parkinson's Disease Rating Scale IB \& II (MDS-UPDRS IB \& II), Non-Motor Symptom Aassessment Scale for Parkinson's Disease (NMSS) , Hoehn and Yahr Scale, and other scales related to quality of life, etal---all through self-reported online questionnaires. Participants will also be asked to return to the PaWei every 3 months at regular intervals, to complete follow-up scales related to quality of life, and neuropsychological assessments, etal. Anyone with Parkinsonian Disorders is welcome to participate.

Conditions

• Parkinsonian Disorders

Interventions

OTHER

No intervention

Sponsors & Collaborators

• First Affiliated Hospital, Sun Yat-Sen University

  collaborator OTHER

• Tianjin Medical University General Hospital

  collaborator OTHER

• Peking Union Medical College Hospital

  collaborator OTHER

• Chinese PLA General Hospital

  collaborator OTHER

• Shanghai Zhongshan Hospital

  collaborator OTHER

• The First Affiliated Hospital of the Fourth Military Medical University

  collaborator OTHER

• Affiliated Hospital of North Sichuan Medical College

  collaborator OTHER

• The Affiliated Nanjing Drum Tower Hospital of Nanjing University Medical School

  collaborator OTHER

• Changshu Hospital of Traditional Chinese Medicine

  collaborator OTHER

• The Affiliated Hospital of Qingdao University

  collaborator OTHER

• Guangxi Ruikang Hospital

  collaborator OTHER

• Xi'an Central Hospital

  collaborator OTHER

• First Affiliated Hospital of Chongqing Medical University

  collaborator OTHER

• The First Hospital of Hebei Medical University

  collaborator OTHER

• Jieyang People's Hospital

  collaborator OTHER

• Luoyang Central Hospital

  collaborator OTHER

• Taian City Central Hospital

  collaborator OTHER

• Gansu Provincial Hospital

  collaborator OTHER

• First Affiliated Hospital of Harbin Medical University

  collaborator OTHER

• Daqing Oil Field Hospital

  collaborator OTHER

• Fujian Provincial Hospital

  collaborator OTHER

• The Affiliated Hospital of Xuzhou Medical University

  collaborator OTHER

• Taizhou Hospital

  collaborator OTHER

• Zhejiang Hospital

  collaborator OTHER

• The 101st Hospital of Chinese People's Liberation Army

  collaborator OTHER

• The First Affiliated Hospital of Zhengzhou University

  collaborator OTHER

• The First Affiliated Hospital of Dalian Medical University

  collaborator OTHER

• China-Japan Union Hospital, Jilin University

  collaborator OTHER

• Wuhan No.1 Hospital

  collaborator OTHER

• Shanghai Jiao Tong University Affiliated Sixth People's Hospital

  collaborator OTHER

• Northern Jiangsu People's Hospital

  collaborator OTHER

• Shanghai Tongji Hospital, Tongji University School of Medicine

  collaborator OTHER

• Shanghai 5th People's Hospital

  collaborator OTHER

• Third People's Hospital, Huzhou City, Zhejiang Province, China

  collaborator OTHER

• Suzhou Municipal Hospital

  collaborator OTHER

• Ningbo No. 1 Hospital

  collaborator OTHER

• The First People's Hospital of Changzhou

  collaborator OTHER

• Affiliated Hospital of Jiangsu University

  collaborator OTHER

• The Second Affiliated Hospital of Harbin Medical University

  collaborator OTHER

• The First Affiliated Hospital with Nanjing Medical University

  collaborator OTHER

• Fujian Medical University Union Hospital

  collaborator OTHER

• Shanghai Changzheng Hospital

  collaborator OTHER

• Second Affiliated Hospital of Nanchang University

  collaborator OTHER

• Jingjiang People's Hospital

  collaborator OTHER

• Qingdao Municipal Hospital

  collaborator OTHER

• Xi'an No.3 Hospital

  collaborator OTHER_GOV

• Lianyungang Hospital Affiliated Bengbu Medical College

  collaborator OTHER

• Jinzhou Medical University

  collaborator OTHER

• Shanghai 10th People's Hospital

  collaborator OTHER

• Huadong Hospital

  collaborator OTHER

• No. 102 Hospital of Chinese People's Liberation Army

  collaborator OTHER

• Shandong Provincial Hospital

  collaborator OTHER_GOV

• Anhui Provincial Hospital

  collaborator OTHER_GOV

• Affiliated Hospital of Guangdong Medical University

  collaborator OTHER

• Huashan Hospital

  lead OTHER

Eligibility

Sex

ALL

Healthy Volunteers

Yes

Timeline & Regulatory

Start

2018-10-01

Primary Completion

2028-09-30

Completion

2033-09-30

Countries

• China

Study Locations