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Natural History Study of Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation (LBSL)

NCT03624374 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 100

Last updated 2024-07-03

No results posted yet for this study

Summary

In this study, we will conduct retrospective chart and imaging reviews and prospective longitudinal virtual assessments of individuals with LBSL.

Conditions

  • Leukoencephalopathies
  • LBSL
  • Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation
  • White Matter Disease
  • Ataxia, Cerebellar
  • Genetic Disease

Sponsors & Collaborators

  • Hugo W. Moser Research Institute at Kennedy Krieger, Inc.

    lead OTHER

Principal Investigators

  • Amena S Fine, MD PhD · Moser Center for Leukodystrophies at Kennedy Krieger Institute

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2018-04-01
Primary Completion
2029-05-31
Completion
2029-05-31

Countries

  • United States

Study Locations

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Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03624374 on ClinicalTrials.gov