MedTrace Logo

Quality of Life in Patients With Congenital Afibrinogenemia

NCT03484065 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 250

Last updated 2020-11-12

No results posted yet for this study

Summary

The aim of this observational study is to evaluate the quality of life in patients with congenital afibrinogenemia using the Haemo-QoL SF for kids and the Haem-A-QoL for adult patients.

Conditions

  • Afibrinogenemia, Congenital

Interventions

OTHER

Questionnaire quality of life

Sponsors & Collaborators

  • University Hospital, Geneva

    lead OTHER

Principal Investigators

  • Alessandro Casini, MD · University Hospitals of Geneva

Eligibility

Min Age
8 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2016-06-30
Primary Completion
2019-07-31
Completion
2020-06-30

Countries

  • United States
  • Algeria
  • Canada
  • Egypt
  • France
  • Germany
  • India
  • Italy
  • Japan
  • Kuwait
  • Lebanon
  • Morocco
  • Netherlands
  • Pakistan
  • Poland
  • Serbia
  • Slovakia
  • Spain
  • Switzerland
  • Tunisia
  • Turkey (Türkiye)

Study Locations

More Related Trials

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03484065 on ClinicalTrials.gov