Canadian CP Registry - Registre Canadien de la Paralysie Cérébrale

Summary

The Canadian Cerebral Palsy (CP) Registry is a confidential, nation-wide collection of medical and social information about children with cerebral palsy. The Registry was first implemented in 2003 in 6 administrative regions of Quebec and was later extended to paediatric centres in Newfoundland, Nova Scotia, Ontario, Alberta, and British Columbia. Over 1850 children living with Cerebral Palsy have been registered so far. The Registry is the first national registry for cerebral palsy in North America.

Conditions

• Cerebral Palsy

Sponsors & Collaborators

• Kids Brain Health Network

  collaborator UNKNOWN

• Children's Treatment Network

  collaborator NETWORK

• Montreal Children's Hospital of the MUHC

  collaborator OTHER

• Alberta Children's Hospital

  collaborator OTHER

• Women and Children's Health Research Institute, Canada

  collaborator OTHER

• Provincial Health Services Authority

  collaborator OTHER

• IWK Health Centre

  collaborator OTHER

• The Hospital for Sick Children

  collaborator OTHER

• Holland Bloorview Kids Rehabilitation Hospital

  collaborator OTHER

• McGill University Health Centre/Research Institute of the McGill University Health Centre

  lead OTHER

Principal Investigators

• Michael I Shevell, MDCM · McGill University Health Centre/Research Institute of the McGill University Health Centre

• Maryam Oskoui, MD, MSc · McGill University Health Centre/Research Institute of the McGill University Health Centre

Eligibility

Min Age

18 Months

Max Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2004-04-14

Primary Completion

2020-04-30

Completion

2020-04-30

Countries

• Canada

Study Locations