World Bleeding Disorders Registry
NCT03327779 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 20000
Last updated 2023-08-14
Summary
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
Conditions
- Hemophilia A
- Hemophilia B
- Von Willebrand Diseases
Sponsors & Collaborators
-
World Federation of Hemophilia
lead OTHER
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2018-01-26
- Primary Completion
- 2028-01-31
- Completion
- 2028-01-31
Countries
- Canada
Study Locations
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