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Study About Annoucement of the Diagnosis of Neurofibromatosis 1 in de Novo Forms

NCT03298438 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 31

Last updated 2017-10-02

No results posted yet for this study

Summary

Neurofibromatosis type 1 (NF1) is one of the most common autosomal dominant genetic disorders. The aim of our study was to evaluate post-traumatic stress disorder (PTSD) in patients and their families following the disclosure of sporadic NF1. Diagnosis of NF1 was retained according to NIH criteria, familial forms were excluded. The French version of the Impact of Event Scale-Revised was used for the diagnosis of PTSD.

Conditions

  • Neurofibromatosis 1
  • Diagnoses Disease
  • Post Traumatic Stress Disorder

Sponsors & Collaborators

  • University Hospital, Brest

    lead OTHER

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2016-07-15
Primary Completion
2016-12-31
Completion
2016-12-31

Countries

  • France

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03298438 on ClinicalTrials.gov