CAPRI National Juvenile Idiopathic Arthritis Registry

Summary

Juvenile Idiopathic Arthritis (JIA) is a disorder of unknown cause characterized by chronic inflammation of the joints and other organs. It affects about 1 in a 1000 Canadian children and if untreated it can produce lifelong disability. The Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) includes most pediatric rheumatologists in Canada. They have successfully collaborated for the past 20 years producing groundbreaking research on the modern course and outcomes of JIA. The CAPRI JIA Registry is an ongoing universal registry of Canadian children with JIA that collects longitudinal data on disease course, outcomes and adverse events to inform healthcare decisions and to gain new insights into the disease and its treatment.

Conditions

• Juvenile Idiopathic Arthritis (JIA)

Sponsors & Collaborators

• Children's Hospital of Eastern Ontario

  collaborator OTHER

• The Hospital for Sick Children

  collaborator OTHER

• IWK Health Centre

  collaborator OTHER

• London Health Sciences Centre

  collaborator OTHER

• Royal University Hospital Foundation

  collaborator OTHER

• University of Manitoba

  collaborator OTHER

• University of Calgary

  collaborator OTHER

• Alberta Children's Hospital

  collaborator OTHER

• Memorial University of Newfoundland

  collaborator OTHER

• McMaster University

  collaborator OTHER

• McMaster Children's Hospital

  collaborator OTHER

• McGill University Health Centre/Research Institute of the McGill University Health Centre

  collaborator OTHER

• Université de Montréal

  collaborator OTHER

• Laval University

  collaborator OTHER

• University of British Columbia

  lead OTHER

Principal Investigators

• Jaime Guzman, MD, FRCPC · University of British Columbia

• Adam Huber, MD · IIWK Health Centre, Halifax, Nova Scotia, Canada

• Ciaran Duffy, MD · Children's Hospital of Eastern Ontario, Ottawa, Ontario

• Gaëlle Chédeville, MD · McGill University Health Centre/Research Institute of the McGill University Health Centre

• Heinrike Schmeling, MD · Alberta Children's Hospital

• Linda Hiraki, MD,FRCPC,MS · Hospital for Sick Children (SickKids)

• Heinrike Schmeling, MD · University of Calgary / Alberta Children's Hospital

• Susanne Benseler, MD, PhD · University of Calgary / Alberta Children's Hospital

• Marinka Twilt, MD MSCE PhD · University of Calgary / Alberta Children's Hospital

Eligibility

Max Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2017-02-01

Primary Completion

2026-02-01

Completion

2026-02-01

Countries

• Canada

Study Locations