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The International Registry for Leigh Syndrome

NCT03137355 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 200

Last updated 2023-12-01

No results posted yet for this study

Summary

The purpose of this study is to develop a database containing clinical and laboratory information for patients with Leigh syndrome. The goal is to provide a greater understanding of Leigh syndrome allowing further characterization of this disease.

Conditions

  • Leigh Syndrome
  • Leigh Disease
  • Leigh's Necrotizing Encephalopathy
  • Subacute Necrotizing Encephalomyopathy
  • Subacute Necrotizing Encephalomyelopathy

Sponsors & Collaborators

  • The University of Texas Health Science Center, Houston

    lead OTHER

Principal Investigators

  • Mary Kay Koenig, MD · The University of Texas Health Science Center, Houston

Eligibility

Min Age
0 Days
Max Age
100 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2015-06-17
Primary Completion
2030-06-17
Completion
2030-06-17

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03137355 on ClinicalTrials.gov