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The National Amyotrophic Lateral Sclerosis Registry

NCT01772602 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 30000

Last updated 2026-04-29

No results posted yet for this study

Summary

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Conditions

Sponsors & Collaborators

Principal Investigators

  • Paul Mehta, MD · Centers for Disease Control and Prevention

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2010-10-31
Primary Completion
2040-12-31
Completion
2040-12-31

Countries

  • United States

Study Locations

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Entities

Diseases
Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01772602 on ClinicalTrials.gov