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Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome

NCT01425944 · Status: ACTIVE_NOT_RECRUITING · Type: OBSERVATIONAL · Enrollment: 600

Last updated 2026-03-02

No results posted yet for this study

Summary

This study has three aims that hope to expand the knowledge on the cause of Sturge-Weber Syndrome (SWS) and improve clinical care of Sturge-Weber Syndrome patients.

Conditions

  • Sturge-Weber Syndrome

Sponsors & Collaborators

  • National Institutes of Health (NIH)

    collaborator NIH

  • University of California, San Francisco

    collaborator OTHER

  • National Institute of Neurological Disorders and Stroke (NINDS)

    collaborator NIH

  • Duke University

    collaborator OTHER

  • Children's Hospital of Michigan

    collaborator OTHER

  • Baylor College of Medicine

    collaborator OTHER

  • Wills Eye

    collaborator OTHER

  • Nationwide Children's Hospital

    collaborator OTHER

  • New York University

    collaborator OTHER

  • Children's Hospital Medical Center, Cincinnati

    collaborator OTHER

  • Hugo W. Moser Research Institute at Kennedy Krieger, Inc.

    lead OTHER

Principal Investigators

  • Anne M Comi, M.D. · Hugo W. Moser Research Institute at Kennedy Krieger, Inc.

Eligibility

Min Age
1 Month
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2010-09-30
Primary Completion
2025-12-31
Completion
2027-02-09

Countries

  • United States

Study Locations

More Related Trials

Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01425944 on ClinicalTrials.gov