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Experiences of Genetics Patients With Visible Abnormalities Who Facilitate Teaching in Genetics Clinics

NCT00341718 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 30

Last updated 2017-07-02

No results posted yet for this study

Summary

This study will describe the experience of patients with visible physical abnormalities in the genetics clinic when they are involved in teaching others about their condition. Information from this study may be used to enhance educational experiences in genetics clinics.

Patients 18 years of age and older with a visible physical anomaly who have been seen by a genetics professional in the past 5 years may be eligible for this study.

In a tape-recorded telephone interview, patients are asked about the following:

* Their experiences when visiting the genetics clinic
* The circumstances under which they have been approached to participate in teaching others
* Their perspective on specific teaching behaviors used in genetic consultations, and how this perspective is affected by their perception of their own visible difference
* The benefits and downsides of being involved in teaching others
* The circumstances under which they feel comfortable being approached by genetics providers to help teach others about their condition
* The conditions or circumstances that make some individual teaching experiences better or worse than others

Conditions

  • Learning

Sponsors & Collaborators

  • National Human Genome Research Institute (NHGRI)

    lead NIH

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2006-03-29
Completion
2007-03-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00341718 on ClinicalTrials.gov