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Genetic Risk: Whether, When, and How to Tell Adolescents

NCT03421327 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 85

Last updated 2019-02-07

No results posted yet for this study

Summary

This study is being conducted to learn more about family communication of genetic risk information. Semi-structured interviews lasting up to one hour will be conducted with three populations: parent/child pairs at risk for Huntington's Disease, parent/child pairs at risk for hereditary cancer, and genetic counselors.

Conditions

  • Huntington Disease
  • Hereditary Breast and Ovarian Cancer
  • Hereditary Cancer
  • Hereditary Non-polyposis Colon Cancer
  • Hereditary Non-Polyposis Colorectal Cancer Syndrome

Sponsors & Collaborators

Principal Investigators

  • Debra Mathews, PhD, MA · Johns Hopkins Berman Institute of Bioeithics

Eligibility

Min Age
15 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2017-09-01
Primary Completion
2018-12-31
Completion
2018-12-31

Countries

  • United States

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03421327 on ClinicalTrials.gov