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Research Accelerated by You Lupus Registry

NCT06927219 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 10000

Last updated 2026-01-23

No results posted yet for this study

Summary

Summary The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is a fully remote, longitudinal registry designed to collect data from adults and children living with lupus. The primary goal is to better understand the diagnosis, treatment, care, and quality of life for those affected by the disease.

Remote Participation This is a decentralized, online-only registry. Participation is conducted entirely through a secure web-based portal. There are no physical site visits or travel requirements; participants can contribute from any location with internet access.

Participation Details

Consent: Informed consent is completed electronically.

Surveys: Participants complete electronic surveys upon enrollment and every six months thereafter.

Data Types: Collected data is self-reported and includes demographics, diagnosis history, treatment information, and patient-reported outcomes (PROs), such as quality of life.

Purpose and Data Use The LFA uses registry data to:

Address Constituent Needs: Inform programs and resources for the lupus community.

Advance Research: Share patient insights with to ensure therapies are developed with the consideration of what matters and what matters most to people living with lupus.

Patient Engagement and Clinical Research Matching: Participants may be contacted to assess eligibility for patient engagement or clinical research opportunities or to complete specific sub-surveys regarding trial participation.

Conditions

  • Systemic Lupus Erythematosus (SLE)
  • Lupus Nephritis (LN)
  • Cutaneous Lupus Erythematosus (CLE)

Sponsors & Collaborators

  • Lupus Foundation of America

    lead OTHER

Principal Investigators

  • Joy N Buie, PhD, MSCR, RN · Lupus Foundation of America

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-10-01
Primary Completion
2030-09-30
Completion
2050-12-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06927219 on ClinicalTrials.gov