Study to Identify and Measure the Values and Palliative Care Pref. of Hindu Patients and Their Caregivers
NCT05538481 · Status: WITHDRAWN · Type: OBSERVATIONAL
Last updated 2023-07-07
Summary
Historically, palliative care in the US has been rooted in the cultural values of a Caucasian, Christian middle class. Greater understanding of how culture influences the delivery of palliative care to minority patients is needed to achieve health equity.
The purpose of this study is to learn more about the cultural values (Hindu customs and beliefs) and palliative care (specialized care for people living with a serious illness) preferences of the Hindu community. To the study team's knowledge, there has not been another study that has used a research approach to help better understand and measure the cultural values and palliative care preferences of Hindu participants with cancer and their caregivers.
Conditions
- Neoplasms
Interventions
- OTHER
-
Semi-structured interview
A collection of individual cultural values and palliative care preferences within the focus group meetings
- OTHER
-
Developed survey completion
A collection of individual responses to a survey created after focus group completion and analysis
- OTHER
-
Systems of Belief Inventory (SBI-15R)
A 15-item questionnaire designed to measure religious and spiritual beliefs and practices and the social support derived from a community sharing those beliefs.
Sponsors & Collaborators
-
Atrium Health Levine Cancer Institute
collaborator OTHER -
Wake Forest University Health Sciences
lead OTHER
Principal Investigators
-
Rushil Patel, MD · Atrium Health Levine Cancer Institute
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2023-06-30
- Primary Completion
- 2023-12-31
- Completion
- 2024-06-30
Countries
- United States
Study Locations
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