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Interview Study of Adult and Child Patients and Parents of Children With Swelling Due to Nephrotic Syndrome.

NCT05505500 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 150

Last updated 2025-12-22

No results posted yet for this study

Summary

Researchers from the University of Michigan and Northwestern University are studying people's experiences with swelling caused by Nephrotic Syndrome. Interviews with patients (child and adult) and parents of young children will be conducted. The information collected from the interviews will be used to develop a survey to use when testing new medications for Nephrotic Syndrome.

Please consider participating in a 1-hour long interview with the Prepare-NS research study to discuss children and adults experiences with swelling.

Conditions

  • Fluid Overload
  • Glomerulosclerosis, Focal Segmental
  • Edema
  • Membranous Nephropathy
  • Minimal Change Disease
  • Minimal Change Nephrotic Syndrome
  • IgM Nephropathy
  • Nephrotic Syndrome
  • Glomerular Disease
  • Nephrotic Syndrome, Minimal Change
  • Nephrotic Syndrome in Children
  • Nephrotic Syndrome With Edema (Diagnosis)
  • FSGS

Interventions

BEHAVIORAL

Interview

Concept Elicitation Interviews are used to create tools followed by Cognitive Debrief Interviews that are used to review created tools.

Sponsors & Collaborators

Principal Investigators

  • Eloise Salmon, M.D. · University of Michigan

  • John Peipert, Ph.D. · Northwestern University

Eligibility

Min Age
2 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2022-04-18
Primary Completion
2026-04-30
Completion
2026-04-30

Countries

  • United States

Study Locations

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Entities

Diseases
Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05505500 on ClinicalTrials.gov