PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

Summary

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

Conditions

• Pulmonary Hypertension
• Global Health

Sponsors & Collaborators

• Imperial College London

  collaborator OTHER

• Johns Hopkins University

  collaborator OTHER

• Stanford University

  collaborator OTHER

• University of Sheffield

  collaborator OTHER

• University of Pittsburgh

  collaborator OTHER

• University of Pavia

  collaborator OTHER

• Hospital de Niños de la Santísima Trinidad

  collaborator UNKNOWN

• Academy of Medical Sciences of Ukraine

  collaborator OTHER

• The Methodist Hospital Research Institute

  collaborator OTHER

• Vanderbilt University Medical Center

  collaborator OTHER

• Mayo Clinic

  collaborator OTHER

• National and Kapodistrian University of Athens

  collaborator OTHER

• Aristotle University Of Thessaloniki

  collaborator OTHER

• University Hospital of Targu Mures, Romania

  collaborator OTHER

• University Hospital Heidelberg

  collaborator OTHER

• Milpark Hospital

  collaborator UNKNOWN

• University of Minnesota

  collaborator OTHER

• Royal Prince Alfred Hospital, Sydney, Australia

  collaborator OTHER

• Fiona Stanley Hospital

  collaborator OTHER

• Sunshine Coast University Hospital

  collaborator UNKNOWN

• China-Japan Friendship Hospital

  collaborator OTHER

• Medical University of Graz

  collaborator OTHER

• National Hospital Organization Okayama Medical Center

  collaborator OTHER

• Royal Hobart Hospital

  collaborator OTHER_GOV

• University Hospital, Zürich

  collaborator OTHER

• Universidad Nacional de La Plata

  collaborator OTHER

• Gold Coast Hospital and Health Service

  collaborator OTHER_GOV

• University of Giessen

  lead OTHER

Eligibility

Sex

ALL

Healthy Volunteers

Yes

Timeline & Regulatory

Start

2020-01-30

Primary Completion

2050-01-30

Completion

2055-01-30

Countries

• Germany

Study Locations