Health Care Disparities in Culturally Diverse, Special Needs & Disadvantaged Populations - Bridging the Gap
NCT05156619 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 1200
Last updated 2022-01-25
Summary
The overall goal of the project is to characterize the diagnosis, care and outcomes of advanced breast cancer in unique ethnic cohorts in greater Jerusalem, with a focus on the Arab population and ultra-orthodox Jewish population and to improve and streamline care of women from multi-ethnic backgrounds by further understanding barriers to healthcare access. At completion, the collected data will enable planning of culturally appropriate and strategic programs that are culturally tailored to improve the standard of care, outcomes and healthcare access for women living with advanced breast cancer from these unique cohorts.
Target population: Ultra-orthodox Jewish and Arab patients with advanced breast cancer (ABC)
Objectives:
1. Clinical \& psychosocial characterization of ultra-orthodox Jewish and Arab women individuals ABC (including clinical characteristic \& treatment, outcomes, access and inclusion in clinical trials) along the advanced breast cancer journey
2. Evaluate and identify modes of access to care and barriers to breast cancer care for this population - individually communally, cultural-religiously and professionally (including healthcare professionals)
3. Develop a model for improving health care access and advocacy, tailored to each communities needs
4. Apply the knowledge to developing education training and health promotion - including for the individual, community leadership, and healthcare providers
5. Optimize access to clinical trial participation and reduce any disparities in clinical trial recruitment and participation
6. Develop and tailor culturally appropriate psycho-social interventions to improve psychological wellbeing and quality of life
Conditions
Sponsors & Collaborators
-
Hadassah Medical Organization
lead OTHER
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2021-09-26
- Primary Completion
- 2023-06-30
- Completion
- 2023-07-01
Countries
- Israel
Study Locations
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