Preparing Patient-Caregiver Dyads with Parkinson's Disease for Future Decision Making
NCT05084209 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 33
Last updated 2025-02-10
Summary
Persons with Parkinson's disease and family care partners are often unprepared to make difficult, future medical decisions. Earlier conversations about future medical decisions between persons with Parkinson's disease and family care partners are needed before communication and cognitive difficulties become severe. In this study, the investigators will pilot test a novel dyadic intervention to help persons with Parkinson's disease and family care partners make future medical decisions. The investigators hypothesize the intervention will be feasible and acceptable among persons with Parkinson's disease and family care partners.
Conditions
- Parkinson Disease
Interventions
- BEHAVIORAL
-
Parkinson's medical decision making support
Participants will be asked to view and work through medical decision making support resources. The resources will include information on medical decisions that may occur in Parkinson's disease, and general medical decisions that anyone may need to make (i.e. choosing a medical decision maker). The resources will also include suggestions on how to discuss these decisions.
Sponsors & Collaborators
-
Purdue University
lead OTHER
Principal Investigators
-
Jiayun Xu · Purdue University
Study Design
- Allocation
- NA
- Purpose
- SUPPORTIVE_CARE
- Masking
- NONE
- Model
- SINGLE_GROUP
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- Yes
Timeline & Regulatory
- Start
- 2024-06-26
- Primary Completion
- 2024-08-27
- Completion
- 2025-01-27
Countries
- United States
Study Locations
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