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Survey of Lifestyle and Its Feelings in Families of Patients in Home Parenteral Nutrition

NCT05048030 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 104

Last updated 2025-04-30

No results posted yet for this study

Summary

Description of the life style of patients and families during the course of long term HPN.

1. Evaluation of the familial impact of HPN, and the way it is perceived
2. Evaluation of the satisfaction regarding the management by the multi-professional team (Medical, nursing, home care company and logistic, social, psychologist etc..) for improving the global management of these challenging patients
3. Analysis of the factors related to specific distress and the protective factors

Conditions

  • Home Parenteral Nutrition

Sponsors & Collaborators

  • Hôpital Necker-Enfants Malades

    collaborator OTHER

  • Imagine Institute

    lead OTHER

Principal Investigators

  • Olivier Goulet, MD, PHD · Department of Pediatric Gastroenterology-Hepatology-Nutrition, National Reference Center for Rare Digestive Diseases, Pediatric Intestinal Failure Rehabilitation Center

Eligibility

Min Age
18 Months
Max Age
23 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2021-09-01
Primary Completion
2022-10-01
Completion
2022-10-01

Countries

  • France

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05048030 on ClinicalTrials.gov