Burden of Disease and Functional Impairment in XLH
NCT04946409 · Status: ACTIVE_NOT_RECRUITING · Type: OBSERVATIONAL · Enrollment: 60
Last updated 2025-07-20
Summary
Observational study comprising prospective follow up as well as retrospective chart review in order to evaluate the longitudinal course of the disease in XLH patients with a specific focus on functional impairment, physical performance and complications associated with the disease or respective treatment.
Conditions
- X Linked Hypophosphatemia
Interventions
- OTHER
-
no intervention
no intervention
Sponsors & Collaborators
-
Kyowa Kirin, Inc.
collaborator INDUSTRY -
Wuerzburg University Hospital
lead OTHER
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2020-10-01
- Primary Completion
- 2024-11-30
- Completion
- 2026-10-31
Countries
- Germany
Study Locations
More Related Trials
-
The Study of Long-term Deterioration of Kidney Transplants.
NCT00217126 ·Status: COMPLETED
-
Influence of Human Albumin Supplementation on Kidney Dysfunction After Liver Transplantation
NCT06535945 ·Status: RECRUITING ·Phase: PHASE4
-
Comparing Glycaemic Benefits of Active Versus Passive Lifestyle Intervention in Kidney Allograft Recipients
NCT02233491 ·Status: COMPLETED ·Phase: NA
-
Usefulness of Alpha-GST in Liver Transplantation
NCT02451046 ·Status: UNKNOWN
-
PROlonged Ex-vivo Normothermic Machine PERfusion for Kidney Regeneration
NCT04693325 ·Status: UNKNOWN ·Phase: NA
-
Study of the Renal Perfusion in Healthy Volunteers and Renal Transplant Recipients During an Orthostatic Stress
NCT02179411 ·Status: COMPLETED ·Phase: NA
-
Impact of Sympathetic Renal Denervation- a Study in Patients After Renal Transplantation
NCT01899456 ·Status: COMPLETED ·Phase: NA
-
The Impact of Magnesium Supplementation on Insulin Resistance and Secretion in Renal Transplant Recipients
NCT01291030 ·Status: COMPLETED ·Phase: NA
-
Deceased Donor Biomarkers and Recipient Outcomes
NCT01848249 ·Status: COMPLETED
-
Bone Density and Vascular Calcifications Evolution After Renal Transplant
NCT04713774 ·Status: RECRUITING
-
Resistive Index Measurements After Kidney Transplantation
NCT01879124 ·Status: COMPLETED
-
Effects of Preoperative Long-Term Immunonutrition in Patients Listed for Liver Transplantation
NCT00495859 ·Status: UNKNOWN ·Phase: NA
-
Renal Perfusion, Filtration and Oxygenation After Liver Transplantation -Effects of av Postoperative Blood Pressure
NCT02455115 ·Status: COMPLETED ·Phase: NA
-
Evaluation of HEMO2Life® for Kidney Graft Preservation (OXYOP): 4 Years Follow-up
NCT05050513 ·Status: UNKNOWN
-
Use of Predigraft in Kidney Transplant Patients
NCT04969757 ·Status: COMPLETED ·Phase: NA
-
Define Predictors for Posttransplant Diabetes Mellitus Study
NCT06440330 ·Status: RECRUITING
-
Serum GLYcomics to Predict Graft Loss and Mortality After Liver Transplantation
NCT05866796 ·Status: RECRUITING
-
Evaluation of a Marine OXYgen Carrier: HEMO2Life® for hypOthermic Kidney Graft Preservation, Before Transplantation (OXYOP)
NCT02652520 ·Status: COMPLETED ·Phase: PHASE1
-
Insulin Secretory Capacity in Insulin-independent Pancreas-Kidney Recipients Compared to Controls
NCT00618761 ·Status: UNKNOWN ·Phase: NA
-
Post-transplant Thrombotic Microangiopathy: Evaluation of Outcomes at the Bologna Kidney Transplant Centre
NCT06759961 ·Status: RECRUITING
-
Incidence, Risk Factors and Outcomes of Diaphragm Dysfunction After Lung Transplantation
NCT04103996 ·Status: COMPLETED
-
Identification of Patient Important Outcomes in Lung Transplantation
NCT06066229 ·Status: UNKNOWN
-
Evolution and Clinical Outcomes in Patients Undergoing Liver Transplantation
NCT02917382 ·Status: UNKNOWN
-
HP 129Xe MRI for Evaluation of CLAD in Lung Transplant Recipients
NCT05550662 ·Status: TERMINATED ·Phase: PHASE2
-
Effectiveness of an APN-led Self-management Program in Patients in the First Year After Renal Transplantation
NCT02282124 ·Status: COMPLETED ·Phase: NA