International Registry of Patients With Alpha Thalassemia
NCT04872179 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 500
Last updated 2025-04-04
Summary
This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with Alpha thalassemia.
Conditions
- Alpha-Thalassemia
- Alpha Thalassemia Major
- Alpha Thalassemia Minor
Sponsors & Collaborators
-
University of California, San Francisco
lead OTHER
Principal Investigators
-
Tippi C MacKenzie, MD · University of California, San Francisco
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2017-01-31
- Primary Completion
- 2027-01-31
- Completion
- 2037-01-31
Countries
- United States
Study Locations
More Related Trials
-
Atrial Fibrillation in Beta-Thalassemia
NCT05508932 ·Status: RECRUITING
-
Long Term Outcomes in β Thalassemia Major
NCT02307786 ·Status: COMPLETED
-
Assessment of Quality of Life in Thalassemic Patients at Assiut University Hospital: A Single-center Experience
NCT05790980 ·Status: UNKNOWN
-
Evaluation of Nutritional Status in Thalassemia Major Patients in Assiut Children Hospital
NCT03161899 ·Status: COMPLETED
-
Factors Promoting Increased Rate and Success of Pregnancy in the Thalassemia Population in Toronto
NCT00327639 ·Status: UNKNOWN
-
In Utero Hematopoietic Stem Cell Transplantation for Alpha-thalassemia Major (ATM)
NCT02986698 ·Status: TERMINATED ·Phase: PHASE1
-
The Change of Coagulation Markers in Children With β-thalassemia Disease After Stem Cell Transplantation
NCT00789516 ·Status: COMPLETED
-
Genetic Factors Affecting the Severity of Beta Thalassemia
NCT00159042 ·Status: COMPLETED
-
Dermatological Abnormalities in Beta-thalassemia Major
NCT03894605 ·Status: UNKNOWN
-
Assessment of Pain in People With Thalassemia
NCT00872339 ·Status: COMPLETED
-
A Study of Long-term Treatment With Deferasirox in Patients With Beta-thalassemia and Transfusional Hemosiderosis
NCT00171171 ·Status: COMPLETED ·Phase: PHASE3
-
Demographic, Clinical, Laboratory and Genetical Characteristics of Patients With Beta Thalassemia Intermedia
NCT01443312 ·Status: COMPLETED
-
the Safety and Efficacy Evaluation of HGI-002 Injection in Patients With Transfusion-Dependent α-Thalassemia
NCT05851105 ·Status: RECRUITING ·Phase: EARLY_PHASE1
-
Beta-thalassemia and Microparticles
NCT01284738 ·Status: COMPLETED ·Phase: NA
-
Association of Hb F Level With Clinical Severity of Beta Thalassemia
NCT04917978 ·Status: RECRUITING
-
Evaluating People With Thalassemia: The Thalassemia Longitudinal Cohort (TLC) Study
NCT00661804 ·Status: COMPLETED
-
Evaluating the Effect of N-Acetyl Cysteine and Alpha Lipoic Acid in Patients With Beta Thalassemia
NCT07157722 ·Status: NOT_YET_RECRUITING ·Phase: PHASE3
-
A 3-year, Prospective, Non-interventional, Multicenter Registry in Sickle Cell Disease (SCD) Patients
NCT01220115 ·Status: COMPLETED
-
Prevalence of Pulmonary Hypertension (PAH) in Patients With Thalassemia
NCT01496963 ·Status: COMPLETED
-
Genetics of Alpha Thalassemia in Israeli Ethnic Groups
NCT00159029 ·Status: COMPLETED
-
Detection of β Thalassemia Carriers by Red Cell Parameters Obtained From the H2 Automatic Counter
NCT00481221 ·Status: UNKNOWN
-
Sickle-cell Disease Registry of the GPOH
NCT03327428 ·Status: RECRUITING
-
ERN-EuroBloodNet Registry on Patients With Rare Red Blood Cell Defects and COVID-19
NCT06831799 ·Status: COMPLETED
-
Genetic Variants Affecting the Clinical Severity of Beta Thalassemia
NCT04918056 ·Status: UNKNOWN
-
Congenital Heart Surgery in Pediatric Patients With Beta-Thalassemia Major
NCT04367701 ·Status: COMPLETED