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Concerns of Children Whose Parents Have Cystic Fibrosis

NCT04702386 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 27

Last updated 2025-11-20

No results posted yet for this study

Summary

As more and more patients with cystic fibrosis (CF) become parents, we have studied parenting concerns in this serious chronic disease in a first study (MucoPar) which is ongoing.

The current study (MucoKids) is an extension of the previous MucoPar study and aims to explore and collect the perceptions, expectations and needs of children whose one parent has CF.

This will be done in the context of individual interviews or in several small groups of children led by a psychologist who will encourage them to develop what constitutes to be the child of somebody with CF.

The collected information should make it possible to develop and propose adapted medico-psycho-social interventions, if necessary, in connection with patient associations.

Conditions

Interventions

BEHAVIORAL

Focus groups

Groups of 3 to 8 children led by the study psychologist lasting 1 hour for the 8-11-year-old children and up to 2 hours for the children of at least 12 years old, about being the child of a parent with CF

BEHAVIORAL

Individual interviews

Interview led by the psychologist about being the child of a parent with CF

Sponsors & Collaborators

  • Grégory Lemarchal Association

    collaborator UNKNOWN

  • URC-CIC Paris Descartes Necker Cochin

    collaborator OTHER

  • Assistance Publique - Hôpitaux de Paris

    lead OTHER

Principal Investigators

  • Cécile FLAHAULT, PhD · Assistance Publique - Hôpitaux de Paris

  • Dominique HUBERT, MD · Assistance Publique - Hôpitaux de Paris

Eligibility

Min Age
6 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2021-02-18
Primary Completion
2022-02-18
Completion
2022-02-18

Countries

  • France

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04702386 on ClinicalTrials.gov