Parenting Concerns in Patients With Cystic Fibrosis (MucoPar)
NCT04133246 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 52
Last updated 2025-11-20
Summary
The purpose of this study is to explore and collect the perceptions, expectations and needs of CF patients about parenting. This will be done in the context of several small groups of patients led by a psychologist who will ensure that all the participants express themselves; he will encourage them to develop their points of view, their divergences and their common points about what constitutes to be a parent.
The collected information should make it possible to develop and propose adapted medico-psycho-social interventions, if necessary, in connection with patient associations
Conditions
Interventions
- BEHAVIORAL
-
Focus group
Groups of 6 to 10 patients and spouses led by the psychologist about their parenthood lasting 2 hours
- BEHAVIORAL
-
Individual interview
Interview led by the psychologist about the patient's parenthood
Sponsors & Collaborators
-
URC-CIC Paris Descartes Necker Cochin
collaborator OTHER -
Assistance Publique - Hôpitaux de Paris
lead OTHER
Principal Investigators
-
Cécile FLAHAULT, Ph.D · Assistance Publique - Hôpitaux de Paris
-
Dominique HUBERT, MD · Assistance Publique - Hôpitaux de Paris
Study Design
- Allocation
- NA
- Purpose
- SUPPORTIVE_CARE
- Masking
- NONE
- Model
- SINGLE_GROUP
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2019-09-25
- Primary Completion
- 2020-12-21
- Completion
- 2020-12-21
Countries
- France
Study Locations
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