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Medication Adherence and Non-adherence in Adults With Rare Disease

NCT04541875 · Status: WITHDRAWN · Type: OBSERVATIONAL

Last updated 2022-05-12

No results posted yet for this study

Summary

The purpose of this study is to use the Medication Adherence Reasons Scale (MAR-Scale) to determine the extent of non-adherence to specific medications indicated to treat cystic fibrosis, hemophilia (A or B), idiopathic pulmonary fibrosis, myasthenia gravis, and sickle cell disease, and to identify the top patient-reported reasons for non-adherence. Internal reliability of the MAR-Scale will also be assessed in each condition.

Conditions

Interventions

OTHER

MAR-Scale

The MAR-Scale is a 20-item questionnaire based on commonly reported reasons for non-adherence to medications.

Sponsors & Collaborators

  • The Touro College and University System

    collaborator OTHER

  • Xperiome

    lead OTHER

Principal Investigators

  • Elizabeth J Unni, BpharmMBAPhD · Touro College of Pharmacy

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2021-01-31
Primary Completion
2022-09-30
Completion
2022-09-30

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Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04541875 on ClinicalTrials.gov