Quality Improvement Project - "My Logbook! - I Know my Way Around!"; ("Mein Logbuch - Ich Kenne Mich Aus!")

Summary

In this study, the main goal is to implement and evaluate a novel, evidence-based psycho-educative program for children in oncological care. Patients are provided with booklets tailored to each specific stage of their treatment. Among other factors, children's emotional well-being is evaluated as well as feasibility. The study is carried out at multiple sites across Austria, Germany and Italy/South Tirol.

Conditions

• Brain Tumor
• Neurofibromatoses
• Sarcoma
• Leukemia
• Hematologic Diseases
• Neuroblastoma

Interventions

OTHER

"My Logbook! - I know my way around!"

Special issues/booklets of "My Logbook - I know my way around!" - Every booklet is based on evidence-based interventions. It illustrates psychosocial and interdisciplinary processes in a standardized way, resulting in a practical guide ("My Logbook") to accompany the child throughout all stages of oncological treatment.

Sponsors & Collaborators

• St. Anna Kinderspital, Austria

  collaborator OTHER

• Charite University, Berlin, Germany

  collaborator OTHER

• Cnopfsche Kinderklinik, Nürnberg

  collaborator UNKNOWN

• Kepler University Hospital

  collaborator OTHER

• University Hospital, Saarland

  collaborator OTHER

• Hannover Medical School

  collaborator OTHER

• Krankenhaus Bozen

  collaborator OTHER

• Goethe University

  collaborator OTHER

• Universitätsklinikum Hamburg-Eppendorf

  collaborator OTHER

• Universitätsklinikum Leipzig

  collaborator OTHER

• University Hospital Muenster

  collaborator OTHER

• University Hospital Tuebingen

  collaborator OTHER

• Salzburger Landeskliniken

  collaborator OTHER

• Leuwaldhof St.Veit (Kinder- und Jugendreha)

  collaborator UNKNOWN

• University Hospital, Essen

  collaborator OTHER

• Medical University of Graz

  collaborator OTHER

• University Hospital Erlangen

  collaborator OTHER

• Wuerzburg University Hospital

  collaborator OTHER

• Klinik Bad Oexen, Germany

  collaborator UNKNOWN

• Universitätsklinikum Köln

  collaborator OTHER

• University Hospital Schleswig-Holstein

  collaborator OTHER

• University Hospital Carl Gustav Carus

  collaborator OTHER

• Universitätsmedizin Mannheim

  collaborator OTHER

• University Hospital Regensburg

  collaborator OTHER

• Luca-Dethlefsen-Hilfe e.V.

  collaborator UNKNOWN

• Insel Gruppe AG, University Hospital Bern

  collaborator OTHER

• Staedtisches Klinikum Karlsruhe

  collaborator OTHER

• Medical University of Vienna

  lead OTHER

Study Design

Allocation

NA

Purpose

TREATMENT

Masking

NONE

Model

SINGLE_GROUP

Eligibility

Min Age

6 Years

Max Age

14 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2020-09-07

Primary Completion

2023-12-31

Completion

2023-12-31

Countries

• Austria
• Germany
• Italy
• Switzerland

Study Locations