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The Impact of Charcot-Marie-Tooth Disease in the Real World

NCT03782883 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 3321

Last updated 2024-11-14

No results posted yet for this study

Summary

An observational, non-interventional registry study to collect real-world data from people living with Charcot-Marie-Tooth disease (CMT) and its treatment, which will be available to researchers to further the knowledge of Charcot-Marie-Tooth disease and improve patient care.

Conditions

  • Charcot-Marie-Tooth Disease

Sponsors & Collaborators

  • ACMT-Rete per la malattia di Charcot-Marie-Tooth OdV

    collaborator UNKNOWN

  • Charcot-Marie-Tooth Association

    collaborator OTHER

  • Charcot-Marie-Tooth UK

    collaborator UNKNOWN

  • CMT France

    collaborator UNKNOWN

  • Federación Española de Enfermedades Neuromusculares

    collaborator UNKNOWN

  • Hereditary Neuropathy Foundation

    collaborator OTHER_GOV

  • Pharnext S.C.A.

    collaborator OTHER

  • Vitaccess Ltd

    lead INDUSTRY

Principal Investigators

  • Mark JW Larkin, PhD · Vitaccess Ltd

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2018-10-09
Primary Completion
2023-12-31
Completion
2023-12-31

Countries

  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03782883 on ClinicalTrials.gov