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Light Exposure Patterns and Symptoms Among Patients With Erythropoietic Protoporphyria

NCT03682731 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 14

Last updated 2018-10-02

No results posted yet for this study

Summary

Background: Erythropoietic protoporphyria (EPP) is characterized by development of painful skin symptoms upon exposure to visible light dye to accumulation of the photoactive substance protoporphyrin IX (PpIX) in the skin.This study aimed to quantify the actual light exposure of patients with EPP during everyday life. The investigators further aimed to establish the associations between symptoms and light exposure, use of protective clothes, and erythrocyte PpIX concentration.

Conditions

Sponsors & Collaborators

  • Bispebjerg Hospital

    lead OTHER

Eligibility

Min Age
12 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2017-04-01
Primary Completion
2017-08-01
Completion
2017-08-01

Countries

  • Denmark

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03682731 on ClinicalTrials.gov