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Longitudinal Study of the Porphyrias

NCT01561157 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1500

Last updated 2026-05-15

No results posted yet for this study

Summary

The objective of this protocol is to conduct a longitudinal multidisciplinary investigation of the human porphyrias including the natural history, morbidity, pregnancy outcomes, and mortality in people with these disorders.

Conditions

  • Acute Porphyrias
  • Cutaneous Porphyrias

Sponsors & Collaborators

  • The American Porphyrias Expert Collaborative

    lead OTHER

  • National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

    collaborator NIH

Principal Investigators

  • Hetanshi Naik, PhD · Stanford University

Eligibility

Min Age
1 Minute
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2010-11-01
Primary Completion
2030-06-30
Completion
2030-06-30

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01561157 on ClinicalTrials.gov