Hereditary Hepatorenal Tyrosinemia Natural History in Egypt and the Arab World (Multicenter Clinical Study)
NCT03446586 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 50
Last updated 2019-01-10
Summary
The purpose of the registry/repository is to understand the natural history of tyrosinemia in our region and to provide a mechanism to store data and specimens to support the conduct of future research about hereditary tyrosinemia among the Arabs.
Conditions
- Hereditary Tyrosinemia, Type I
Sponsors & Collaborators
-
Society of Friends of Liver Patients in the Arab World (SLPAW)
collaborator UNKNOWN -
Yassin Abdelghaffar Charity Center for Liver Disease and Research
lead OTHER
Principal Investigators
-
Tawhida Y Abdelghaffar, MD · Yassin Abdelghaffar Charity Center for Liver Disease and Research
Eligibility
- Max Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2019-04-05
- Primary Completion
- 2023-11-05
- Completion
- 2023-12-31
Countries
- Egypt
Study Locations
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