Social Participation After Childhood Craniopharyngioma
NCT03139526 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 20
Last updated 2017-05-08
Summary
Craniopharyngioma is a rare, benign central nervous system tumor, which may be a source of multiple complications, from endocrinology to vision, neurology and neurocognitive functions. This morbidity can lead to reduced participation in life activities, as described in the International Classification of Functioning, Disability, and Health (ICF). The primary objective of this study is to measure participation in life activities in a population of children affected by childhood craniopharyngioma, using the assessement of life habits questionnaire (LIFE-H questionnaire), validated as a social participation measurement tool in various pediatric disabilities.
Conditions
- Children With a Craniopharyngioma
Interventions
- OTHER
-
observational study so no intervention
observational study, so no intervention
Sponsors & Collaborators
-
BERTHILLIER Julien
lead OTHER
Eligibility
- Min Age
- 1 Day
- Max Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2014-01-01
- Primary Completion
- 2014-07-01
- Completion
- 2014-07-01
More Related Trials
-
Study of Brain and Spinal Cord Tumor Growth and Cyst Development in Patients With Von Hippel Lindau Disease
NCT00005902 ·Status: ACTIVE_NOT_RECRUITING
-
Horse Therapy for Children, Adolescents and Young Adults in Remission From Medulloblastoma
NCT05755295 ·Status: RECRUITING ·Phase: NA
-
Food Preferences and Craniopharyngiomas
NCT07301554 ·Status: NOT_YET_RECRUITING
-
Long Term Follow up of Patients Under 5 Years of Age With High Grade Glioma Diagnosed in France Between 1990 and 2015
NCT03690570 ·Status: UNKNOWN
-
Management of Pediatric Craniopharyngioma by a Combination of Partial Surgical Resection, and Protontherapy (Craniopharyngioma)
NCT02842723 ·Status: COMPLETED ·Phase: PHASE2
-
Neuromodulation for Hypothalamic Obesity
NCT03708913 ·Status: WITHDRAWN ·Phase: NA
-
Nimotuzumab in Children With Intrinsic Pontine Glioma
NCT00561691 ·Status: COMPLETED
-
A Phase II Trial of Intensity-Modulated Proton Therapy for Incompletely Resected Craniopharyngioma and Observation for Craniopharyngioma After Radical Resection
NCT02792582 ·Status: ACTIVE_NOT_RECRUITING ·Phase: PHASE2
-
A Family Study of Adults With Glioma
NCT00339352 ·Status: COMPLETED
-
A Phase II Study of Pegylated Interferon Alfa 2b (PEG-Intron(Trademark)) in Children With Diffuse Pontine Gliomas
NCT00036569 ·Status: COMPLETED ·Phase: PHASE2
-
Feasibility of 11C-MET PET/MRI Imaging in Pediatric Brain Fossa Tumors
NCT03977896 ·Status: COMPLETED ·Phase: NA
-
Rare Embryonal Tumors of the Central Nervous System: International Registry
NCT05711992 ·Status: RECRUITING
-
Radiation Induced Alterations in Resting State Brain Networks in Pediatric Brain Tumor Patients
NCT06185686 ·Status: RECRUITING
-
Expectations and Needs of a Glioblastoma Caregiver
NCT06490497 ·Status: COMPLETED
-
Evaluation of Functional MRI and DTI (Imaging Techniques) in Children With Epilepsy and Focal Brain Lesions
NCT00229840 ·Status: COMPLETED ·Phase: NA
-
MEDIR Medulloblastome
NCT01197924 ·Status: UNKNOWN
-
Children and Adults With Chordoma
NCT03910465 ·Status: RECRUITING
-
Molecular Analysis of Samples From Patients With Diffuse Intrinsic Pontine Glioma and Brainstem Glioma
NCT01106794 ·Status: RECRUITING
-
Natural History of and Specimen Banking for People With Tumors of the Central Nervous System
NCT02851706 ·Status: COMPLETED
-
Role of the Tumor Microenvironment in Aggressive Meningiomas
NCT05821790 ·Status: UNKNOWN
-
Follow-up Survey of Patients Who Were Treated for Medulloblastoma or Primitive Neuroectodermal Tumors of the Central Nervous in Norway
NCT02851355 ·Status: COMPLETED
-
Social Inequalities in the Participation and Activity in Children and Adolescents With Hodgkin-lymphoma
NCT02808520 ·Status: UNKNOWN
-
Preclinical Brain Tumor Models
NCT06045065 ·Status: UNKNOWN
-
Natural History of Patients With Brain and Spinal Cord Tumors
NCT00009035 ·Status: COMPLETED
-
Determination of Immune Phenotype in Glioblastoma Patients
NCT02751138 ·Status: COMPLETED