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Quality of Life (QOL) Registry for Patients With AL Amyloidosis

NCT02574676 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 343

Last updated 2019-04-09

No results posted yet for this study

Summary

This is an online registry to document the psychometric properties of SF-36v2 among patients with AL Amyloidosis, to document patients' burden of disease, to better understand the patient's experience and to follow quality of life issues using a variety of QOL measures.

Conditions

  • AL Amyloidosis
  • Amyloidosis

Interventions

OTHER

non-interventional

Sponsors & Collaborators

  • Amyloidosis Research Consortium

    collaborator OTHER

  • Amyloidosis Support Groups

    collaborator OTHER

  • Amyloidosis Foundation

    collaborator OTHER

  • Quality Metrics

    collaborator UNKNOWN

  • Prothena Biosciences Ltd.

    lead INDUSTRY

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2015-10-31
Primary Completion
2018-07-31
Completion
2018-07-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02574676 on ClinicalTrials.gov