Teens Taking Charge: Managing Cancer Online

Summary

Cancer is the most common potentially fatal disease of adolescence and the Internet represents an ideal means to deliver education, self-monitoring capabilities, and social support to enhance disease self-management by adolescents with cancer. While two interactive coping websites exist for young people with cancer, they are: (1) not interactive, (2) do not focus on helping youth gain skills for transition and independence, and (3) do not provide opportunities for meaningful social support. In summary, there is a crucial need to develop a comprehensive interactive Internet-based self-management program targeting AWC that is comprised of cancer education, self-management skills, and opportunities for social support, and that is cost-effective.

Conditions

• Cancer

Interventions

BEHAVIORAL

Taking Charge: Managing Cancer Online

n addition to standard medical care, adolescents in the experimental group will receive the "Taking Charge: Managing Cancer Online" Internet self-management program. The intervention is a 12-module interactive multi-component treatment protocol that consists of Cancer-specific education, self-management strategies, and social support that is available in English and French.

BEHAVIORAL

Standard Medical Care and Cancer Resource Center

The control group is designed to control for the potential effects on outcomes of time, attention and computer use during the intervention. In addition to standard medical care, adolescents in the attention control group will be provided with access to a self-guided patient education study website, which will have two components: basic patient educational materials about Cancer ("Cancer Resource Centre") and online assessments.

Sponsors & Collaborators

• Université de Montréal

  collaborator OTHER

• Children's Hospital of Eastern Ontario

  collaborator OTHER

• St. Justine's Hospital

  collaborator OTHER

• Hamilton Health Sciences Corporation

  collaborator OTHER

• Institute for Clinical Evaluative Sciences

  collaborator OTHER

• McGill University

  collaborator OTHER

• McMaster University

  collaborator OTHER

• University of Alberta

  collaborator OTHER

• The Hospital for Sick Children

  lead OTHER

Principal Investigators

• Jennifer N Stinson, PhD, CPNP · The Hospital for Sick Children

Study Design

Allocation

RANDOMIZED

Purpose

HEALTH_SERVICES_RESEARCH

Masking

SINGLE

Model

PARALLEL

Eligibility

Min Age

12 Years

Max Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2016-01-31

Primary Completion

2019-04-01

Completion

2019-04-01

Countries

• Canada

Study Locations