Aspiring to Awesome- Patient Preference Privacy Selections in EMR
NCT01862133 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 136
Last updated 2018-01-19
Summary
Health information technology, including health information exchange, offers the potential to improve care by providing an integrated view of relevant, integrated patient information from multiple health care providers practicing in multiple sites. However, realizing that potential can be difficult, particularly with respect sensitive information. Increasingly, patients, patient advocate groups, and even the National Coordinator for Health Information Technology are pushing for patients to have more granular control over specifically who can see what personal health information in their electronic health records.
This will be a demonstration project aimed at showing the initial feasibility a system allowing patient controls on their electronic health records. Because of the exploratory nature of the research, the investigators do not have specific hypotheses. The investigators hope that this demonstration and feasibility project will lead to more extensive prospective evaluations of patient control of access to their health records and other tools for enhancing patient control over access to their health records.
Conditions
- Sexually Transmitted Diseases
Interventions
- OTHER
-
Patient preferences
Software for recording patients' preferences for which providers see which parts of their EMRs, and EMR software for restricting access to data based on patients' preferences.
Sponsors & Collaborators
-
Department of Health and Human Services
collaborator FED -
Regenstrief Institute, Inc.
collaborator OTHER -
Indiana University
lead OTHER
Principal Investigators
-
William Tierney, MD · Indiana University
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- Yes
Timeline & Regulatory
- Start
- 2013-08-31
- Primary Completion
- 2013-12-31
- Completion
- 2014-03-31
Countries
- United States
Study Locations
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