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Institutional Registry of Haemorrhagic Hereditary Telangiectasia

NCT01761981 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 590

Last updated 2025-05-22

No results posted yet for this study

Summary

The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival.

This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.

Conditions

  • Haemorrhagic Hereditary Telangiectasia

Sponsors & Collaborators

  • Hospital Italiano de Buenos Aires

    lead OTHER

Principal Investigators

  • Marcelo M Serra, MD · HHT Center of Excelence Hospital Italiano de Buenos Aires

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2010-01-01
Primary Completion
2025-05-19
Completion
2035-12-31

Countries

  • Argentina

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01761981 on ClinicalTrials.gov