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Enroll -HD: A Prospective Registry Study in a Global Huntington's Disease Cohort

NCT01574053 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 35000

Last updated 2024-02-28

No results posted yet for this study

Summary

Enroll-HD is a longitudinal, observational, multinational study that integrates two former Huntington's disease (HD) registries-REGISTRY in Europe, and COHORT in North America and Australasia-while also expanding to include sites in Latin America. More than 30,000 participants have now enrolled into the study. With annual assessments and no end date, Enroll-HD has built a large and rich database of longitudinal clinical data and biospecimens that form the basis for studies developing tools and biomarkers for progression and prognosis, identifying clinically-relevant phenotypic characteristics, and establishing clearly defined endpoints for interventional studies. Periodic cuts of the database are now available to any interested researcher to use in their research - visit www.enroll-hd.org/for-researchers/access-data/ to learn more.

Conditions

Sponsors & Collaborators

  • CHDI Foundation, Inc.

    lead OTHER

Principal Investigators

  • Bernhard G Landwehrmeyer, MD, PhD · University of Ulm

  • Jamie Levey · CHDI Foundation, Inc.

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2012-07-31
Primary Completion
2062-01-31
Completion
2062-01-31

Countries

  • United States
  • Argentina
  • Australia
  • Austria
  • Belgium
  • Canada
  • Chile
  • Colombia
  • Denmark
  • France
  • Germany
  • Ireland
  • Italy
  • Netherlands
  • New Zealand
  • Poland
  • Portugal
  • Spain
  • Switzerland
  • United Kingdom

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01574053 on ClinicalTrials.gov