National Eye Institute Biorepository for Retinal Diseases

NCT01496625 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 650

Last updated 2026-05-22

No results posted yet for this study

Summary

Background:

\- To understand diseases of the retina and the eye, information is needed about people with and without such diseases. Researchers want to study these people and follow them over time. They also want to study body tissues and blood to understand the nature of eye disease. Studying genes, cells, and tissues may help them understand why some people get eye problems and others do not, or why some people respond to treatment while others do not. Researchers want to collect physical samples and personal data to develop a National Eye Institute database.

Objectives:

\- To collect health information and blood and tissue samples from people with and without eye diseases, to be used in research studies.

Eligibility:

* Individuals at least 2 years of age with different types of eye disease.
* Healthy volunteers with no history of eye disease.

Design:

* Participants may be recruited from National Eye Institute studies or may be referred from other sources.
* Participants will be screened with a physical exam and medical history. They will also have a full eye exam. Questions will be asked about family medical history, especially about eye disease.
* Blood samples will be collected. Other samples, such as saliva, tears, hair, stool, and urine, may be collected as needed. Adult participants may also provide a skin sample.
* Tissue or fluid from eye collected as part of eye care or treatment may also be added to the database.
* No treatment will be provided as part of this study.

Conditions

Sponsors & Collaborators

  • National Eye Institute (NEI)

    lead NIH

Principal Investigators

  • Tiarnan DL Keenan, M.D. · National Eye Institute (NEI)

Eligibility

Min Age
2 Years
Max Age
120 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2012-06-18

Countries

  • United States

Study Locations

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Entities

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01496625 on ClinicalTrials.gov