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The LETS Study: A Longitudinal Evaluation of Transition Services

NCT00975338 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 149

Last updated 2023-10-23

No results posted yet for this study

Summary

This project will describe and evaluate the impact of a unique partnership model designed to coordinate transfer of care by formally linking pediatric and adult heath care services. The experiences of young people receiving this model of care will be compared and contrasted against the experiences of young people receiving the current standard of care. Young people with a diagnosis of Cerebral Palsy (CP), Acquired Brain Injury in childhood (ABIc), and Spina Bifida (SB) will be followed during the transition period. Preparation for transition, health care, and transfer of care service delivery will be detailed in a process evaluation. An outcome evaluation will measure the ability of the two models of service to enable youth to maintain continuity within the health care system after transitioning from pediatric to adult care. Secondary outcomes, including how health, well-being, social participation, transition readiness, and health care utilization are affected will also be explored.

Conditions

  • Cerebral Palsy
  • Brain Injuries
  • Spinal Dysraphism

Interventions

OTHER

LIFEspan

Rehabilitation services provided by an inter-disciplinary team of health professionals addressing the transfer of care to adult services and emerging needs related to transition to adulthood. LIFEspan staff are cross-appointed to both a pediatric and an adult hospital through a formally linked model of care.

OTHER

Non-LIFEspan

Standard of care in the absence of a formal partnership between a pediatric and an adult hospital.

Sponsors & Collaborators

  • Ontario Neurotrauma Foundation

    collaborator OTHER

  • Holland Bloorview Kids Rehabilitation Hospital

    lead OTHER

Principal Investigators

  • Colin Macarthur, PhD · The Hospital for Sick Children

  • Mark Bayley, MD · Toronto Rehab Institute

Eligibility

Min Age
16 Years
Max Age
23 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2009-09-30
Primary Completion
2014-06-30
Completion
2016-07-12

Countries

  • Canada

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00975338 on ClinicalTrials.gov