International Pediatric Adrenocortical Tumor Registry
NCT00700414 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 9999
Last updated 2026-05-22
Summary
This study aims to collect demographic and medical information including detailed family history of cancer of children and adolescents with adrenocortical tumors in order to learn more about the clinical and epidemiological aspects, treatment modalities, and outcome of patients with this rare disease, worldwide.
In addition, investigators at St. Jude Children's Research Hospital (SJCRH) plan to perform molecular studies of tumor cells aimed to clarify the role of the TP53 gene and other genetic pathways in these tumors. They aim to obtain relevant biological material from participants with adrenocortical tumor (ACT), their biological parents, and relatives for determination of the TP53 germline status, molecular studies of the TP53 gene, and other molecular pathways.
Conditions
- Adrenocortical Tumor
Sponsors & Collaborators
-
St. Jude Children's Research Hospital
lead OTHER
Principal Investigators
-
Raul C Ribeiro, MD · St. Jude Children's Research Hospital
Eligibility
- Max Age
- 21 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2001-10-01
- Primary Completion
- 2040-12-31
- Completion
- 2040-12-31
Countries
- United States
Study Locations
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