Quality of Friendships in Children With Neurofibromatosis
NCT00508235 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 61
Last updated 2012-08-01
Summary
The aim of this study is to determine if children with a higher disease severity have lower quality friendships than children who are less severely affected and children who are unaffected. Researchers will test the hypothesis that the quality of friendships is inversely related to their disease severity.
Specific Aims:
1. To use the FQQ to determine if the quality of friendships in children with NF1 is lower than the quality of friendships in unaffected children.
2. To use a disease severity scale and the FQQ to determine if children who are less severely affected have higher friendship qualities than children who are more severely affected.
Conditions
- Neurofibromatosis
Interventions
- BEHAVIORAL
-
Questionnaire
Questionnaire about the patient's relationship with their best friend.
Sponsors & Collaborators
-
M.D. Anderson Cancer Center
lead OTHER
Principal Investigators
-
Bartlett D. Moore, PhD · M.D. Anderson Cancer Center
Eligibility
- Min Age
- 8 Years
- Max Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2004-12-31
- Primary Completion
- 2009-07-31
- Completion
- 2009-07-31
Countries
- United States
Study Locations
More Related Trials
-
Transformation of Plexiform Neurofibromas to Malignant Peripheral Nerve Sheath Tumors in Neurofibromatosis Type 1
NCT02211768 ·Status: COMPLETED ·Phase: PHASE1
-
Social Inequalities in the Participation and Activity in Children and Adolescents With Hodgkin-lymphoma
NCT02808520 ·Status: UNKNOWN
-
Fludeoxyglucose F 18 Positron Emission Tomography and Magnetic Resonance Perfusion Imaging in Patients With Neurofibromatosis 1 and Plexiform Neurofibroma
NCT00060008 ·Status: TERMINATED ·Phase: NA
-
Psychosocial Situation of Children With Rare Solid Abdominal Tumors and Their Families
NCT05245123 ·Status: COMPLETED
-
Brain Tumor Treatment Satisfaction Survey
NCT00557375 ·Status: COMPLETED
-
Follow-Up Study of People Treated for Scoliosis
NCT02546479 ·Status: COMPLETED
-
Natural History Study of Patients With Neurofibromatosis Type I
NCT00924196 ·Status: ACTIVE_NOT_RECRUITING
-
Child's Study of the Impact of PF Lesion on Motor Skills, Language, Cognitive Functioning and Social Cognition
NCT04174820 ·Status: UNKNOWN
-
Magnetic Resonance Imaging in Treating Children With Progressive Low-Grade Astrocytoma
NCT00005084 ·Status: UNKNOWN ·Phase: PHASE2
-
Developing Biomarkers of Plexiform Tumor Burden in Patients With Neurofibromatosis-Type 1
NCT05238909 ·Status: ENROLLING_BY_INVITATION
-
Observation of Young Patients Who Are Undergoing Surgery for Craniopharyngioma
NCT00258453 ·Status: COMPLETED ·Phase: NA
-
Tumor Tissue, Blood Samples, and Family History in Predicting Tumor Development and Response to Treatment in Young Patients With Low-Grade Glioma
NCT00891722 ·Status: UNKNOWN
-
Development of Patient-Reported Outcome Measures Assessing Tumor Visibility and Appearance Concerns in Neurofibromatosis Type 1: A Qualitative Study
NCT06880991 ·Status: RECRUITING
-
Functional and Structural Outcomes Following Childhood Bone or Soft Tissue Sarcomas of the Lower Extremity
NCT06737172 ·Status: ENROLLING_BY_INVITATION
-
Components of Social Functioning in Survivors of Pediatric Brain Tumors
NCT03361033 ·Status: COMPLETED
-
Neurobehavioral Functioning in Pediatric Brain Tumor Patients After Proton Beam Radiation Treatment
NCT01180881 ·Status: COMPLETED
-
Coping With High Grade Glioma
NCT00815152 ·Status: TERMINATED ·Phase: NA
-
Resiliency Training for Patients With NF2 Via Videoconferencing With Skype
NCT02811718 ·Status: COMPLETED ·Phase: NA
-
Feasibility and Clinically Application of Magnetic Resonance Fingerprinting
NCT02387840 ·Status: TERMINATED ·Phase: NA
-
Prospective Study of Children and Adolescents With Craniopharyngioma
NCT01272622 ·Status: COMPLETED ·Phase: NA
-
Quality of Life in Patients Who Have Undergone Previous Treatment for Primitive Neuroectodermal Tumors
NCT00278239 ·Status: UNKNOWN
-
Evaluation of Kidney Function in Children With Brain Tumors
NCT00229801 ·Status: WITHDRAWN ·Phase: NA
-
A Study for Image-Guided Radiation Therapy in Pediatric Brain Tumors and Side Effects
NCT00187226 ·Status: COMPLETED ·Phase: PHASE2
-
Reliability of Functional Outcome Measures in Neurofibromatosis 1
NCT02479360 ·Status: COMPLETED
-
A Qualitative Study on the Pain and Quality of Life of Patients With Fabry Disease
NCT05679076 ·Status: UNKNOWN